Welcome

The aHUS Action Network was founded in 2021 by aHUS Patients, Caregivers, Health Care Providers and Activists to Advocate, Educate and Connect the aHUS Community. aAN is a nonprofit corporation registered in the Commo of Virginia and our 501(c)3 charitable status is currently being reviewed by the IRS.

Find out more

aHUS Action Network is pleased to share the first webinar in a new quarterly series for patients, caregivers and other members of the aHUS community.

MISSION

The aHUS Action Network was formed as a gathering place for patients to be:

Mobilized

to advocate for the aHUS community concerns at the local, state, and federal levels.

Informed

about issues affecting the aHUS community and trained for more effective patient advocacy.

Engaged

in encouraging connection, awareness, and solidarity within the aHUS community.

AREAS OF FOCUS

ADVOCACY: Annual Conference and Advocacy Day in Washington, DC
EDUCATION: Webinars and Patient Education Programming
COMMUNITY: Community Building and Assistance

CONNECT

aHUS Action Network is a nonprofit corporation registered in the Commonwealth of Virginia. aAN has applied for 501(c)3 status with the Internal Revenue Service and an official determination is currently pending.

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